Husband's last camping trip

Husband's last camping trip

Saturday, August 9, 2014


I'm still here.  Still fighting and kicking.  Surviving.  It's all I have left.

Life these days with husband has been quite difficult.  He has declined at an alarming rate.  We see Dr  F the 24th (I think) of this month.  They may tell me how much longer, or, worse, shrug their shoulders, baffled at this man who has survived longer than they first believed 4 years ago.  Well, me too.

Some may say, "But, aren't you glad you still have him, making memories?"  Uh, no.  I cannot make memories with him.  He, at times, doesn't even know me, usually at night when I take his glasses off with him sound asleep.  He will open his eyes, smile and say, "Well, hi there."  He may ask me what I'm doing here, or, ask me crazy questions.  Of course, I always find an answer for him.  He believes anything I say to him now.

He has lost total control of all bodily functions.  He is in protective underwear during the day.  I've had to get actual diapers for him, along with the pads that I insert in the diapers to help absorb any leakage.

He has been sleeping during the day, more and more.  Taking him anywhere is difficult.  He panics.  He has started taking his clothes off at all hours of the day.  He, for some odd reason, strips his bed at all hours of the day as well.  I will wake up in the morning to find him naked and all bedding on the floor. 

I have started telling him no at some requests he demands of me.  I usually give in to him, but, lately, I have found myself telling him no at some of his demands.  He does not like it one bit, but, there are times I think, "Enough is enough."  After awhile he forgets I have told him "No!!", comes out of the bedroom with that hazy crazy look in his eyes and be fine.

Since my Mother died, I have felt a peace like no other.  Oh, I miss her, so much so that it's an actual pain, but, this peaceful feeling is more prominent as days go by.

I no longer get sad or upset at anything related to husband or Alzheimer's.  Surviving the death of Mother, well, if I can do that, I can do this.  It's as if she's beside me, giving me comfort and guidance.

Sometimes in the afternoon when husband is sleeping, I sit in my chair and imagine him gone.  It no longer takes my breath away.  There is no pain associated with it anymore.  Not that I don't care.  Just the opposite. 

I am making plans.  For me.  For when he's gone.  It'll be just me then.  A new life.  New beginnings.  Funny, it's not scary anymore. 

It's not so bad anymore. 


  1. I stop here often to see if you have posted. I think about you and wonder how you are doing. I am still praying for you.