Husband's last camping trip

Husband's last camping trip

Saturday, September 29, 2012

A new Season

I once saw a Talk Show where they had a celebrity on that had written her life story.  I was intrigued, because I thought it would be so hard to write a book.  She also said that during the writing of her book, she experienced it all over again.

I now know why.

Writing my book, the emotions, fears, happiness, regrets and just general re-living my life have come into play.  I actually feel as if I'm vomiting words out.  Really, no kidding.

It's all coming out.  I am consumed with telling my story.  I will be doing dishes, when, all of a sudden, a memory will come to me and I have to stop and go to my laptop and write it down.   I want to tell it all.

It's not just about husband and his disease.  It's where I've been and where I'm going.  It's about discovering me, coping with unimaginable events in my life.  It's also about faith and, how God has been a constant in my life.

It has brought out pure, raw emotions.  It's a lot to write a book.  But, in order for me to grow, I have to tell my story.

Husband, on the other hand, is unaware of my writings.  It is not necessary to explain to him what I'm doing. It'll take too much time and energy to get him to understand the concept of writing a book.  He is lost in his own world.

He had a good day yesterday.  I took him with me to a friends house.  He enjoyed himself.  He sat at her kitchen table and nodded his head for 2 1/2 hours.  She would show him pictures and say, "You remember these guys?"  He would smile and nod his head.  She doesn't understand or will not accept the fact that he does not remember any of them.

There was a picture of us, when we were dating.  He did not recognize us.  It was a good picture.  We looked so happy and healthy.  He sure was handsome.  I made a copy of it on her copier.  He stared at that picture all the way home.  Said he doesn't remember that picture.   Asked me several times if that was really him or not.

Jack called earlier this week.  Said he is having a rough time, but, when I asked him if he was going to make it, he said, "Of course, Mom."

God has been working in his life.  The day after he got to Basic, another guy had to leave.  Seems his dad died.  He did return about a week later.  When this guy got back and they had mail call, there was a letter from his dad, the day he died.  In the letter, he told his son how proud he was of him and how much he loved him.

Since then, Jack and this guy have become very close.  He is 28, a bit older than Jack, but, Jack said they have bonded over the fact that his dad is now gone, and Jack's dad is on his way.  Jack said he is kind of like his mentor now.  God put someone in his life when he is so far away that he can relate to.  How neat is that?

I miss my boy.  It's like an ache that won't go away.  I stay busy.  I have husband to care for.  And I have my book to write.

All in all, it was a good week.  Our weather is wonderful.  I saw leaves falling yesterday.  Fall is here.  Soon, the snow may come.  Time to get ready for Winter.  We have a good stock of firewood ready.  Button down the hatches and brace myself for the cold.

Time is going by so fast now.  Husband is fading further and further away from me.  One day, he too will be gone.  And, I will miss him and ache for him as well.  

Friday, September 28, 2012

A new beginning for me?

Thank you for your comments and suggestions on what to install on the front door.  I am going to look into door chimes.

Yesterday was quiet.  I ran an errand and took husband with me.  He loves to ride with me.  As we were driving, he was looking all around at the city, traffic and the sky.  He mentioned the weather at how pleasant it was.

He rested in the afternoon.  There was no sleeping, just resting.  I made a simple dinner.

I got a card for Jack.  I told husband it was from him and needed him to sign it.  I had sent one to Jack last week, but, signed it from Mom.  Husband was excited that he was to send one from him only.

It was a funny card, and, together, we got out some pictures to send along with the card.  We chose some cute pictures, I wrote in the card and told husband to sign it.  Of course, he did not know where to sign, so I had to guide his hand to the bottom of the card.  He did not know how to spell Love, so he spelled it Louve.  I had to tell him how to spell You.  It was simple, Love You Dad.  Took him awhile, but, he did it.

I had to explain to him how the US mail worked.  He was amazed that I would put this in a mail box and it would magically appear to Jack.  He kept saying how neat that was.  Later in the afternoon, he was asking me again how Jack would get the card.  Once he was satisfied that somehow, someway, Jack would get this card, he was quiet, resting on the bed and looking at the ceiling, still, with this look of wonderment on his face.

I had to leave the room.  "He doesn't even understand the US mail anymore?  It's like it was just developed recently?  He thinks it's magic?  He thinks I'm an Einstein, knowing how the mail system works?"  Oh yes, it brought me to my knees.

I knew once Jack left, husband would go downhill.  It's like he held it together for Jack, but, once he was gone, he has stopped fighting.  You can see it.  This decline has been more rapid than say, the last 6 months.

What am I doing with my days now that the children are gone and husband is sleeping?  Well, I am taking this blog to a new level and writing a book.  I have a story to tell.  It's the story of my life, my journey, what brought me here, what I have been through, what I am going through now.

My hope is that I will be able to reach other people traveling this road to madness.

This Blog will still be here.  You will still get a daily glimpse of my life.  But, one day, as you are passing the book isle at the store and 4th Pew on the Left  is there on the shelf,  you can say to yourself, "Hey, I read her Blog!!!"








Thursday, September 27, 2012

Wanderings

Yesterday was better than the day before.  Only because husband slept most of the day.  I let him sleep.  He has not been sleeping well at night anyway, figured he was tired.

Husband asked me  last night whatever happened to his Shop Vac when we moved.  OK, let's go back a little.

When we moved into this house, husband said to leave the Shop Vac at the old place.  Said he had no use for it anymore.  We have no garage here, only a carport and storage.  I did what he asked, told the old landlord we had left it and that was that.

Last week, he asked me about the Shop Vac.  He was looking through all the closets in the house and had been out to the storage in the carport.  I told him we had left it at the old place, per his request.  A few days later he told me, "How could you have left the Shop Vac?  I may need it one day."

So, last night, after dinner, dishes and feeding the dogs,  I did the usual, changed into my PJ's and closed the front door.  Our front door is at the front of the house, along with the master bedroom.  The living room is at the back part of the house.  I don't like the idea of having the front door open when I am so far away from it.  Also, I have a fear of husband getting out without my knowing it and perhaps wandering away.

I was involved in my TV shows (Survivor and The X Factor).  Husband appeared out of nowhere, scaring the you know what out of me and asked me what happened to his Shop Vac.

(Insert big sigh here.)

I explained again to him what we did with the Shop Vac.  I also told him to quit asking about it, it's gone, we don't need it anyway, drop it.

He seemed satisfied with that.  Off he went to bed and to sleep.

As I was going to bed later, the front door was wide open.  I was confused.  I know I closed the door hours earlier.  Husband woke up as I came into the room.  I asked him about the front door.  He said, "Oh, I was outside looking for the Shop Vac."

So, the wanderings have begun.  Lovely.  I knew it would eventually happen, but, like everything else that comes along with this disease, I was not ready for that.

I don't know what I'm supposed to do about this.  And, what's scary is, I never even heard him go out.  How did he leave?  Did he use the walker?  Or, worse, did he attempt to walk on his own?

Now what?


Wednesday, September 26, 2012

Somewhere

I've been in a slump the past few days.

We are, I think, entering the final phase of this disease.  Husband has been absolutely lost the past few days. You cannot hold a conversation with him at all.

As I was talking with him yesterday, his left eye became bigger than his right.  It was an awful sight.  Then, the eyes started to wander.  I kept talking, but, knew I had lost him.

Everything I tell him he does not retain.  Everything.

As I was heating up dinner last night, he asked me what we were having.  I told him.  Went in the kitchen to check on dinner, came back into the living room and he asked me what we were having for dinner.

Yesterday morning I was going to father in law's house to give him Jack's address.  Told husband where we were going, only stopping for gas first.  He became so confused in the car.  Did not know where I was going, saying I was going the wrong way to his dad's.

He has forgotten that he cannot walk anymore.  He tries to walk, stumbles, and, when I tell him to sit in his wheelchair, he looks at me as if I'm crazy.  He told me yesterday he can walk just fine.  It's all in my head, he said.

He is in the bathroom constantly now.  I think he's afraid he's going to have an accident, so, he sits on the toilet.  Every time I went to check on him yesterday, he was in the bathroom.

Also, and this may sound funny to some, but, I have noticed an increase in use of toilet paper.  I put a package out in the basket in the bathroom, by next day, it's half gone.  I don't know what he's doing with the toilet paper, but, I cannot afford to keep buying the stuff!!  Actually, I looked in the waste basket, and it was full of toilet paper.  I asked him why there was so much toilet paper in the trash.  He looked at me as if I were talking a foreign language to him.

Just some of the turn of events in the last few days.

He tells me that I am the one who is imagining there's something wrong with him.  He says he is perfectly normal.  I just have an unusual overactive imagination.  Oh, I wish it were so.

When all this occurs, I am the one who has to react.  I have to act like there is nothing wrong with him.  I have to go along with it.  Otherwise, it can get ugly around here.

It's a crazy house, I'll tell ya.

I woke up this morning, looked at husband sleeping, with those eyes squinted shut and thought to myself, "I wonder what side of the rainbow we're going to be on today?"

Somewhere over that rainbow, is peace.  There is no sickness.  There is no confusion.  There, you can walk again.  There is no Alzheimer's.

It's called Heaven.


Monday, September 24, 2012

Bad dream?

I just read a blog that I have been following for a few years.  Her story is inspirational.  On her blog this morning, she posted about her surprise birthday presents from her husband.  He made her day so special.

As I was reading her blog, I started to feel sorry for myself.  How different my life is compared to hers.  No, I'm not envious, I'm sad that my life does not include a husband who would go all out for his wife's birthday.

My husband doesn't even remember when my birthday is anymore.  He would not know how to do anything for me and my birthday.  He does not remember when our wedding anniversary is.  He does not know when Christmas is.  He does not remember what month Thanksgiving is in.  Easter?  No, we won't go there.

Husband does not know what day of the week it is, asks me constantly during the day what time it is.  There are clocks throughout the house, but, he cannot read a clock anymore.   In fact, he can't read anything anymore.

I can go weeks not thinking about all that we have lost.  Literally, weeks.  Then, something simple as reading another blog can take me on a downward spiral.  I think, in the last 2 1/2 years, I've said, "It's not fair", maybe, 3 times.  Today as I sit here updating my blog, I can honestly say, "It's not fair."

When we married so many years ago, we both thought this would be our "Happily ever-after."  We were so in love, dedicated to each other, raising a family, working hard toward our "future".  We had plans.  We raised a bunch of good, well-rounded kids.

Pat & Christine invited us to their house for dinner yesterday.  As we were getting ready to go, the button on husband's shorts fell off.  He became agitated and flustered.  I got another pair of shorts out for him, one with an elastic waistband.   I went to check on him and there he was, mumbling to himself, very frustrated.  He looked up at me with the most pitiful look on his face and said, "Help me."

He had put both of his legs in one of the legs on the shorts, instead of the elastic waistband.  As I looked, I couldn't help but burst out laughing.  It was better than the obvious.  After hearing me laugh, he too started laughing, all the while saying, "help me, help me."  I got his shorts on him, all the while still laughing.  As we got ready to leave, he said, "You have to dress me everyday, please.  I can't do it anymore."

Alzheimer's has taken another chunk of my heart.  There isn't much left, you monster.

When will this nightmare end?  There are days I imagine this all to be a bad dream.  I imagine I wake up, husband is already off at work, I think about this "bad dream" and shudder.  Thanking God that it was all just a nightmare.

Then, I realize, I'm wide awake and this "bad dream" is in fact , my reality.

Sunday, September 23, 2012

"Going there"

So, life continues to go on.  Despite the fact that my son has left for the Air Force, despite the fact I am now childless and despite the fact that my husband is dying.  Life continues.  Or, lack thereof, for husband.

He is so confused.  It's been coming on slowly.  I noticed it last week, but saw firsthand yesterday just how much he has lost.

He just can't function anymore.  He is helpless.  He repeats himself constantly.  If we see a neighbor out and about, he will greet them with a "Boy, the weather sure has turned nice."  If said neighbor asks him a question, he will nod his head (my interpretation of he doesn't understand what you are saying) and repeat what he said about he weather.  People who don't know what is wrong with him will look at him, then at me, back to husband and shy away from him.  I know what they're thinking.  He talks like he's drunk, so, they must think he's been having a few too many.  It's so sad to watch.

If I could educate people on Alzheimer's, I would tell them first off, look at his eyes.  Those eyes.  I've said it before, I'll say it again.  They haunt me.  You'll know something is wrong mentally if you really look into his eyes.

I'm trying not to get so down, but, I feel myself "going there".

If only I could find a job.  I pray for a job daily.  I have to go back to work.  We need the money.  Home Health Care will care for husband 6 hours per day, 5 days per week.  I got it all figured out.  All is needed at this point is a job.

I am getting angry.  Angry at my situation and lack of a job.  Where are you, Lord?  I cry out.  Has He forsaken me?  Why?  Then, I ask for forgiveness for feeling this way.   I know these feelings are normal, but, I don't like getting angry.  I fight it daily when the phone doesn't ring from a potential employer and when I see husband wandering the house, confused.  I feel it welling up in my chest.  I fight hard to keep it down.

Then I come here and it all comes out.  This is like my best friend.  My heart opens up and my fingers start typing.  The fears, the frustration, the anger, the heartbreak, the sheer audacity of it all, it's here on my blog.

One day, it will all be over.  Husband will be gone.  He will finally be at peace.  He will be in Heaven.  That I know.  I will be left to pick up the pieces of my life.  To start a new life.  Alone.

Today, I have a question for myself.  It's one of those days.

Where do I go from here?


Friday, September 21, 2012

Dogs? What dogs?

Oh, the perks of Alzheimer's.

Yesterday, out of sheer boredom and "I have to get out of this house", I thought it would be fun to look at Apartments, just for the heck of it.

Also, when we moved here, I thought I would have a job by now.  This house is big, 3 bedrooms and 2 Bathrooms.  Once winter hits, I will have to close off half of the house, to save on heating costs.  It's just so big.

Now, I would rather eat hot nails than move again, but, I have to survive somehow, someway.  But, the thought of saving money on rent is appealing to me as well.

So, I took a drive up to one of these Apartments.  They are very nice, but, I've also heard they go by your income.  And, yes, I took husband.

On the way, I told him to not say anything about having dogs.  That would come later.  If we liked the place, rent being reasonable, and if they were a pet friendly community, then we could mention the dogs.  He said he would not say anything.

Got in the office, I started talking to the girl, she offered to show us the grounds and a model unit.  A 1 bdrm, 1 bath unit.  The grounds were so pretty and welcoming.

As we stood up to view the property, husband says, "We have 2 dogs.  One big and one little."  She looked at husband, then glanced at me.  I had the sudden urge to spank husband right there in front of this girl.  Luckily, she smiled and said they were pet friendly and pets were welcome there.

We viewed the grounds and the model.  It is nice, the rent is a lot cheaper there, but, then they add in $25 per month, per pet and $38 per month for water, trash and sewer.  I'm not saving much there.

On the way home, I said, "I told you not to say anything about having dogs."  He looked at me as if I were the crazy one and said, "You never said that."

Next time, I shall go alone.